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Find Sickle Cell Disease Resources and Support

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The organizations listed below may help you get ongoing support for living with sickle disease.


Sickle Cell Disease Association of America

The Sickle Cell Disease Association of America, Inc. (SCDAA), advocates nationwide for greater awareness and care for those who are affected by sickle cell disease. The organization works at the community level and also stages numerous high-profile events, all to bring greater focus to the disease and those who live with it.




Sickle Cell 101

Sickle Cell 101 (SC101) believes that knowledge is power and strives to widely spread information about sickle cell disease. Social media is one of their key tools for communicating with the sickle cell disease community about important topics such as genetic testing and research funding efforts.




Sick Cells

Sick Cells is driven to humanize sickle cell disease by sharing the day-to-day realities of living with the condition. The resilient stories this organization shares give a strong voice to the sickle cell community, influencing policy makers, educators, employers, and health care professionals so that they bring about change.




Sickle Cell Community Consortium

The Sickle Cell Community Consortium (SCCC) is a assembly of patients caregivers, advocates, medical professionals and researchers. The focus on collaborative solutions to define problems and gaps in the sickle cell community and for strategies that can lead to signifcan ans sustainable change.





Bold Lips for Sickle Cell (BLFSC) is a boisterous movement that brings increased attention to sickle cell disease. This organization stages impactful events in local communities that focus primarily on education and awareness. The group is as bold as the bright lipsticks their advocates wear.




All organizations listed are not-for-profit and/or government agencies, and are independent from Novartis Pharmaceuticals Corporation. Novartis has no financial interest in any organization listed, but may provide occassional funding support to these organizations or purchase advertising on their websites or other materials. All descriptions are copyright of the respective organizations. Novartis is not responsible for the actions of any of these organizations.

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